OUTSIDE,
LOOKING
Alzheimer's
Awareness Documentary
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A documentary film and educational Web site
dedicated to helping persons experiencing progressive cognitive
decline
to sustain meaningful participation
in the lives of their families, friends, and communities
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Who can sense the first moments of a connection lost,
a face forgotten, a path interrupted
with the first intimations of an undergrowth that will, in time, obscure
all remembrance
of destinations charted, aspirations dreamt? At what stroke of what eternal
clock
does the death of reason begin? And once struck, how do those who increasingly
find themselves
outside looking in upon the ebbs and flows of life, honor the time passed,
celebrate the time remaining, and grieve the time lost with those whose
lives they share?
Aging baby-boomers are unlikely to relinquish themselves, or those they
love, to progressively debilitating dementias without a fight. Our documentary
and educational tools, told primarily through the voices of individuals
in the earliest stages of cognitive decline, will provide insight into
the triumphs and challenges of an eventuality that is expected to affect
one American every 33 seconds by mid-century.
By exploring the landscapes of minds that are sporadically, yet increasingly,
chaotic, we hope to reveal the remaining essence of what it means to be
human, challenging the perceptions of a youth-dominated culture obsessed
with the speed and efficiency of information processing to the exclusion
of accumulated wisdom and emotional intelligence. By inspiring a reevaluation
of our perceptions of what it means to be human, we hope to improve the
quality of life of those experiencing progressive cognitive decline
and, in doing so, our own.
Targeted Audience
Although Outside, Looking has particular relevance for people
in the earliest stages of a progressive loss of cognitive skills, it is
primarily intended to raise the awareness of the wider community, from
family and professional care partners, to clergy, public policy decision
makers, and the general public.
Project Components
- A 70-90 minute documentary filmed in high definition video format
- Approximately 30, two to four minute, Web- and DVD- based, topic-directed
educational modules with downloadable tip sheets in the form of printable
PDF's
- A Web- and DVD-based readers theater transcript of the film
- A Web-based compilation of all interview material searchable by topic
- An interactive Web-based community for sharing concerns and support
relevant to those in the earliest stages of progressive cognitive decline
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Rationale
Greater public awareness of Alzheimer's related dementia has made
the baby boom generation acutely aware of, and concerned about,
the eventualities of cognitive decline. As the baby boom generation
ages, society will be increasingly experiencing a loss of productivity,
and loved ones will be experiencing a loss of personal connection
and support, due to the progressive cognitive declines of people
whose lives are critically contributing to the happiness and welfare
of our own. The proposed project will deepen our insights into the
experience of progressive cognitive decline in the hope of identifying
opportunities for continuing self-actualization and fulfillment,
not only for those experiencing progressive cognitive declines -
but for all of us whose lives are immeasurably diminished by their
losses.
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